The ALS Association Connecticut Chapter
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National ALS Advocacy Day - A group of concerned Connecticut residents traveled to Washinton, DC to participate in National ALS Advocacy Day on Wednesday, May 17, 2006. The group, representing all individuals affected by ALS in Connecticut, had appointments in all seven Connecticut Congressional offices. Among the priorities discussed were support for a National ALS Registry, ALS research funding through the Department of Defense and revisions to the 20/40 Rule which determines Social Security and Medicare eligibility. To date, Representatives Rosa DeLauro, Christopher Shays and John Larson, we well as Senator Christopher Dodd, have all signed on to support the National ALS Registry Act.